Expert Patient and Patient Engagement
How is the patient’s role evolving in pharmaceutical research?
The patient’s role, regarded for a long time as a mere object of pharmaceutical research and development, is now evolving to become a new player in pharmaceutical research.
The patient’s involvement may occur in different ways. The first model is represented by the creation of networks of patients that autonomously carry out their own research programs by sharing their clinical data, for instance PatientLikeMe. A second way is represented by the input that a patient may give to corporate or academic research, by giving indications and advises on aspects related to the pharmaceutical development process. In order for this second way to be qualified, it is essential that the patient is an “expert”, i.e. with both experience and expertise in the disease.
Event by Fondazione Smith Kline.